Tuesday, May 6, 2008

Joye's Update 5/6/08

The Lord likes Thursday better. We heard today that Wednesday will not work for Andrew to be admitted to Craig Hospital. They tried very hard early this morning to get a jet here to get him, but it was not successful, so it will have to be Thursday. Andrew was okay with that . . . he knows he's going and he's thankful for that. He rested a lot today, so that was good. I spent a lot of time today on the computer doing research (as I've been doing constantly) while he was resting; there is a lot of encouraging information out there. I'm pasting a link here (I hope it works for your to view, you should just be able to click on the link below)
http://www.youtube.com/watch?v=e0NQHro8jBY
This man's level of injury (C-7) is just a little lower than Andrews is (C-5/C-6 area of his spine). There is a lot of information online regarding the doctor (Dr. Carlos Lima) who is doing this adult stem cell procedure at the Lisbon's Egaz Moniz Hospital in Portugal. Please understand this procedure is done by using regenerating cells that we all have in our nasal area from our own bodies . . . this is not the same as embryonic stem cells derived from an unborn fetus. You know I will continue doing extensive research regarding this and other remarkable spinal cord injury medical breakthroughs that are taking place every day. We are praying for another restful day tomorrow and a safe trip for Thursday. I feel that God has lead us there and he will see us there safely. Thank you again for all of your prayers and encouraging words . . . those loving words are so helpful to us both. Andrew loves hearing them and it always warms my heart to hear that so many people are praying. Good Night and God bless. Joye

Monday, May 5, 2008

Joye's Update 5/5/08

Well, we have some news today . . . our trip has been postponed until Wednesday. We were lacking a signature to get Andrew transferred to another state, and it didn't come until late today, so plans had to be changed. But, it's okay; I just took it as a sign from God that Wednesday was a better day to travel than Tuesday. Everything is signed and sealed now, so we're happy about that. Andrew was disappointed, but is happy to know he only had to wait one extra day. He rested well today and he had no fevers. We've read and heard from many of you that you are wanting to visit him in Colorado, which is great . . . I think he needs people around him. Andrew did express to me today that although he does want people to visit, he really wants to get further into his recovery before people make the trip. His desire is to get off the vent, get talking, and be in a better position to be able to visit with people the way he'd like to. Not to mention his regimen for weaning off the vent is going to be drastically different at Craig. It will require loads and loads of rest and small periods of time with very hard work to strengthen the diaphragm followed by loads of rest, and so on. This weaning regimen is a completely different protocol that has been developed for patients who have a spinal cord injury and will be relying solely on the diaphragm to breath. It's much different than the regimen he's been going through at Select. The key is GOOD rest; just like a person who is a body builder . . . they lift heavy weights and then rest the muscles a lot, and then repeat. So I ask you to please understand, he does want to see people, he just wants to have a little control himself as to when that is. Since the beginning of this ordeal, I've made it a point to try very hard to make sure he doesn't feel that he has no choices or no control as to what is happening in his life right now. Andrew is my very best friend and I know that I am his . . . I respect him so much and the most important thing to me is that right now he always feels as though he is my husband and that I am his wife and although I am giving him all the care I can right now . . . I never want him to feel as though my role has changed to just that (caregiver). I will preserve our marriage and our friendship and our love; I just also happen to be the one providing him care as well. Andrew has a lot of pride and he is a very strong man . . . I will make sure that he always knows that will never change. He is my big, strong, kind, loving man and he will always be. We have our faith in God and, of course, that faith has only grown stronger since this has happened. We know that Andrew is in the fight of his life right now and with your prayers and encouragement, and with the love he and I have for each other . . . he's going to get through this just fine, I just know it. God is good and He hears our prayers . . . He is working on this for Andrew. Good Night and God bless you all. Joye

Sunday, May 4, 2008

Joye's Update 5/4/08

Another pretty quiet day. Andrew is still pretty wiped out from fevers yesterday and last night. He did not sleep well last night either. I think he just got over tired yesterday and it really set him back a lot, just as the doctors said it would. I kept things quiet for him today and he did a lot of resting. . . we definitely want him strong enough for his journey Tuesday. His mother will be leaving tomorrow . . . he'll miss her praying with him and reading to him. After a while she will be able to visit him in Colorado . . . we just aren't sure how close the hospital is to lodging, etc. and I will not have a vehicle for a while; so I will check things out once I get there. I know it will be hard for her to be away from him in the mean time. If he's up to it, my sister is going to shave his head and trim his beard down as far as she can for him tomorrow so he'll be spiffy for his trip; besides the hair is itchy for him. I am trying to get packed for colder weather and don't worry . . . I've packed Andrew's tennis shoes for him to walk out of there in. Our faith is in God and His promise to us. We know that God has a purpose for this and we are seeing daily how many people are turning to the Lord . . . prayer is an amazing gift from God and it can bring much comfort and tremendous results. Keep praying and worship the Lord, I believe it's what He wants most from us. Good night and God bless. Joye

Saturday, May 3, 2008

Joye's Update 5/3/08

Today was an okay day. Andrew felt better in the morning than he did in the afternoon. He was quite tired and spiked a fever, but is doing better now. A lot of times the fevers come from getting over tired and they really wipe him out. He's still very excited to be going to Colorado, as we all are. Andrew's faith is still his strength and he continues to pray all the time. Sometimes I see his eyes closed and then he opens them . . . I ask if he's sleeping and he says no and smiles; I know that he's praying. I'm so proud of him and in awe of how strong he is. He's so faithful and absolutely positive that he will walk again. His will and his perseverance amaze me daily. I was laying down last night trying to imagine what he is going through. As I lay there, I tried to feel what he could be feeling while only being able to feel from the chest up, and not have the ability to move arms or legs. The first thing I realized was that my face became itchy and I had no way to scratch it. When I got to the hospital today I asked him if he'd like me to scratch his head and his face, which by the way is a full beard now. He shook his head yes in a way that showed me he needed this in a bad way. I scratched his head and his face, and rubbed his ears for a very long time and he looked as though he was in heaven for just a little while. I did this several times throughout the day as it's just one thing I could think of to make him more comfortable. So many things we take for granted like just being able to scratch an itch when we need to. Well, just 2 more days until we leave . . . thank you for all your prayers in getting him there . . . I believe it will mean the difference in his recovery. God lead us there, He will give Andrew the strength to do the work, and we will soon witness the miracle . . . this I believe. Good Night and God bless you all. Joye

Friday, May 2, 2008

Joye's Update 5/2/08

We're in!!!! We leave early Tuesday morning for Colorado. They want Andrew there by 12:00 noon. Andrew was really happy today; he's really wanting to get there and get to work. We will be there for at least 4 months, and of course the prayer is that he walks out of there at that time or before. I have faith that God will heal him and give him the strength to just that. Our God is an awesome God who gave us His promise and I believe Andrew will be a testimony to it. Andrew has not wavered in his faith that God will heal him. I will continue this blog throughout Andrew's journey, so please keep posting . . . it has done wonders for Andrew's spirit. A lot of people say it's their lifeline to him, when really your posts are our lifeline to you . . . it keeps us going. Thank you all for your prayers and encouragement, we cannot thank you enough. Good Night and God bless. Joye

Thursday, May 1, 2008

Joye's Update 5/1/08

We have good news today. The representative (Sue) from Craig Hospital came today and evaluated Andrew. She spent the better part of 3 hours explaining Craig's entire program to us. She also provided us a lot of hope for Andrew's recovery. I think by the time she was finished, Andrew was ready to get on a plane with her today and go to Colorado. The very best thing I took from her today is the fact that Craig's program is designed purely for someone in Andrew's condition. That is what they are focused for and are best equipped and staffed to manage. So, she of course, is recommending Andrew for the program and as long as his insurance is in agreement . . . then he may be going as soon as next week to Colorado. I will be provided a place to stay as I am told my involvement in his rehabilitation is crucial to his success. I will be able to fly in the air ambulance with him (which eased his mind a lot . . . not so much mine as I REALLY hate to fly). We will also be encouraged to get our kids up their at some point so that they can learn how to help him as well. Any family member with whom he lives will be involved . . . the main goal is to get him to the most functional and "normal" living conditions he can get to. We're still going for the gold and that means 100% functionality, so don't worry about that. And, I know it's a very long way away, but he can have visitors on weekends as there is time set aside from the rigor of rehab for that. During the weekdays it will be quite a rigorous schedule for him. He's looking forward to it and is quite determined to do whatever is asked of him. I'm telling you, he would have gotten on the plane with her today if he could. We are now just praying that we have to insurance issues. Thank you all again for all your prayers . . . God is hearing us and responding. God Bless you all. Joye

Thank You from Andrew and Joye

I wanted to wait until I was with Andrew to write this thank you note. It's Thursday afternoon and I'm here with Andrew and we want to thank everyone from the bottom of our hearts for the fund raising and donations. Julia from Personnel and Sandy (OHN) from ASPC-Yuma came up Tuesday and delivered the $1,315 that you all raised for us for financial assistance with this ordeal. We cannot thank you all enough for your kindness and hard work. You have truly touched our hearts with your thoughtfulness, and all we can say is "may God bless you all." This will help us tremendously right now. Thank you so much. With all our love, Andrew and Joye.